Wednesday, December 26, 2012

Week 9 & 10 - Happy Thanksgiving

Dear family and friends,

Thank you for being patient with us as we recover from surgery and hit the ground running full tilt towards Christmas.  I have been using every extra minute (and there are NOT many of those lately) to try to get a few Christmas gifts completed.  The creative side of my brain seems to go a little slower late at night when the house gets quiet and a job that should take only a little while takes forever!!!!

Update on Maddison:  She is healing nicely.  Maddison came home from the hospital on antibiotics and ended up needing/receiving a second round.  She was miserable for those two weeks. She ended up with a cold too.  Poor thing!!!!  Maddison was having a very difficult time recovering and returning to full health.  We had a 10 day stretch, after returning from the hospital, when none of us really slept.  I think this was harder than when we brought her home from China.  Dave was up to his eyeballs with stuff at work and ended up working late and weekends during that time.  I was trying to keep her quiet enough for him to sleep, when he finally made it home at night and that led to essentially have now sleep for 10 days straight.  Glad those two weeks are over. 

To top off all the sickness Maddison was experiencing, the night terrors returned with a vengeance!  The were lasting for about six hours a night with sometimes two episodes an hour.  My heart just broke for her.  I ended up staying in the nursery at night and trying to catch the terrors right at the beginning.  If she could hear my voice in the first few seconds, the terrors normally would go away and she could get a little sleep.  I had to be on my toes to hear the first sounds of the terrors thou.  Can I say again, I am glad those two weeks are over!!!!!

Maddison finally got enough rest and meds to start to recover.  Now the mouth looks good.  She is actually opening it so we can see in every once in a while.  Maddie is on a soft/liquid diet for a month.  I have learned a lot about pureeing all kinds of things.  Scrambled eggs pureed caught me as the strangest so far, but she loves them.  Her new favorite food is Eggnog.  Oh, yea.......  

We went to our pediatrician last week and he thought she was doing very well.  We will make a followup trip to Shriners Hospital in late January or early February.

Maddison has grown an inch in a month, and had lost a little weight from our first pediatrician visit to the second.  The doctor said this was understandable with her surgery. 

Now, back to the Eggnog.........I am trying to put pounds on my little gal.  All the antibiotics caused a few other problems and a friend shared with me to try limiting her milk products till she is better.  Hello....Eggnog has milk in it.  What should we do now?  Oh well.  That too is getting better.  I will share that we ran out of Eggnog one morning and that led to an hour, yes..... 1 hour meltdown over Nog.  Now we always have some in the fridge.

In the last three or four days Maddison had turned a corner.  She is feeling much, much better and her personality is coming out.  What a cutie!!!  And yes, she is two.  Need I say anything more.  A happy thought thou...she is a happy child who strives to please her Mama and Baba.  

Maddison is not talking.  Even some of the words she was saying before surgery have not returned.  I have been teaching Maddison some sign language and that has really been helping her communicate with us.  It seems to diffuse many situations, but not all.

Birthday news:  Maddison's second Birthday was November 15 and Dave had retreated to the basement with a really bad case of the flu.  I don't think he came us the stairs on the 15th, her birthday.  Now remember Maddison is also on a liquid/soft diet and cake really does not qualify.  I am so glad she is little because we decided to wait until she can actually eat cake to have her birthday. 


Now I know you want to see the photos, so enjoy.

~ Robin  





Dr. Gates, Maddison's pediatrician































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